Health data linkage consent
Datafile
Question asked in the latest wave:
Question label:
Health data linkage consent
Question text:
To complement the information Understanding Society collects, we would like to find out more about your health and treatment from data held by the NHS (in the four countries of the UK). This would allow researchers to investigate how your health and wider circumstances interact. If you agree:
ââ¬Â¢ We would like to link to information the NHS has about your health including:
o data from hospital care records (including dates of admission and consultations, treatments received, and referrals made)
o primary care records (including doctor and nurse consultations, diagnoses received, treatments given, and referrals made)
o data on prescriptions
o information on COVID-19 infection notification and test results
ââ¬Â¢ We will send NHS data holders your personal identifiers (including name, address, sex and date of birth) so that they can identify the records they have about you.
ââ¬Â¢ The NHS data holders will anonymise your records: they will contain an anonymous identification number but not your personal identifiers (name, address, sex, date of birth or NHS number).
ââ¬Â¢ The anonymised NHS records will be added to the answers you have given in this study.
ââ¬Â¢ We will make the combined anonymous data available for academic and policy research purposes only.
ââ¬Â¢ Access to the data will be restricted and controlled, to make sure that researchers use the information responsibly and safely.
ââ¬Â¢ This will not affect the way that you deal with the NHS in any way.
Please read this leaflet and look at this diagram for further information.
Do you give permission for us to pass your personal identifiers (including name, address, postcode, sex and date of birth) to NHS data holders for this purpose?
Question universe:
Ask all
| Value label | Value | Absolute frequency | Relative frequency |
|---|---|---|---|
| missing | -9 | 2 | 0.02% |
| inapplicable | -8 | 130 | 1.03% |
| refusal | -2 | 5 | 0.04% |
| don't know | -1 | 14 | 0.11% |
| Yes | 1 | 8936 | 70.47% |
| No | 2 | 3593 | 28.34% |
| Total | 12680 | 100.0% |
| Mean | Number Missing | Min | Max | Std Dev | N |
|---|---|---|---|---|---|
| 1.29 | 151 | 1.0 | 2.0 | 0.45 | 12529 |



